One of my Porphyria Awareness posts has been featured on the American Porphyria Foundation's Purple Light Blog.  It is different than the post I posted here.  If you would like to check it out, you can HERE.  
I have also recieved many encouraging responses/comments to my Porphyria Awareness posts on my personal Facebook account.  I never knew that sharing my story would actually make a difference. I feel motivated to do more all year long and not just for a week!
It is never easy to put yourself and your story out there. Especially having only negitive experiences with doing so in the past. So, THANK YOU for the positive and supportive comments.  I hope more of my fellow Porphs feel encouraged to do the same.
 

 

 
 
 
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