Just wanted to share a writing of mine I found on my computer. Feelings about growing up with Hereditary Copro Porphyria and how my husband's positive outlook helped me to find my inner fight to live my life to the fullest.
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a scared girl sits in darkness. she's never seen the light of day. don't feel bad for her. it's sad but she doesn't know what she's missing. she doesn't know that other girls walk in the fresh air with the sun painting roses on their cheeks. she thinks pale white feeble skin is the normal look of every girl. she grows ill. the darkness grows damp as well. the chill settles into her bones. accustom to the ache, it too is now normal. other girls must go through the same pain she can only assume. at night she's allowed to open the window, just a crack and take in the sight of the moon. she thinks the moon is beautiful as it glows. but sadness comes when it's time for the moon to slip away and her parents once again close the shutters. it's not that they dislike the sun, her parents that is, they just don't have time to show it to her. they have their own things to deal with.
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a scared girl sits in darkness. she's never seen the light of day. don't feel bad for her. it's sad but she doesn't know what she's missing. she doesn't know that other girls walk in the fresh air with the sun painting roses on their cheeks. she thinks pale white feeble skin is the normal look of every girl. she grows ill. the darkness grows damp as well. the chill settles into her bones. accustom to the ache, it too is now normal. other girls must go through the same pain she can only assume. at night she's allowed to open the window, just a crack and take in the sight of the moon. she thinks the moon is beautiful as it glows. but sadness comes when it's time for the moon to slip away and her parents once again close the shutters. it's not that they dislike the sun, her parents that is, they just don't have time to show it to her. they have their own things to deal with.
one night a healthy and very social boy was running home to make
curfew when he saw the face of an angel peeking out a small upstairs window of
the house across the street. her round white face seemed to sparkle in
the moonlight. he was mesmerized. and then as soon as she
came...she was gone. the next morning he stood at the bus stop wondering
why the girl didn't go to high school with the rest of the neighborhood.
she was now his puzzle to figure out. she was in his head and he didn't
know why.
that night he waited in the bushes of old man hickbee's yard
to catch another glimpse of the moonlit mystery. his eyes were heavy and
he was about it pack up and call it night when he heard the creaking of the old
wooden shutters opening. there she was. he was just going to look at her
but his curiosity grabbed him and before he knew it he was calling up to her
from driveway. they talked all night until the moon began to fade and the
wooden shutters sealed her back into the darkness. he made this a nightly
routine. time passed and the boy wanted more. he told her stories of the
day. he spoke of the sun and how it shined brighter than the moon every
could. she knew his sun-talk was just foolish tall tales but the idea was
pretty grand. she spent her time in the dark dreaming of what the sun
would look like, feel like.
One day determined to show his night angel his world in the sun,
he climbed up the gutter on her house up to her small little window and he
began to rip off the wooden planks of the shutter with the claw end of a
hammer. she heard him call to her and she ran to the window. just
as she reached the windows ledge the hammer pierced thru the shutter allowing
the light of the sun to flood into her room. the sun stung her pale white
skin; it was burning. it was painful. he ripped the planks away one
by one until ever last one was torn down. he climbed into her room and
held her as she cried. the light and the truth hurt her and she was
scared. she wasn't sure what was more painful the burning of her skin and
stinging of her eyes from the blazing light or realizing that she wasn't normal
and that she had missed out on so many wonderful things. she was hurt and
angry that her parents had kept her in that cold, damp, dark place all that
time. they didn't even notice it was making her sick.
the boy was her saving grace. together they ran through
the house tearing open every window. she took his hand and
walked out her front door into the bright new world for the first
time. in the new light of the sun the world looked better than she
had ever seen it before. light no longer hurt her but rejuvenated
her. from that first step out of the darkness of her past and
into the light of the future she never once looked back at that old
dark house. she was finally free to live in the sun, dream in the
moonlight, and build a new home full of light and truth.
